Hi all! I think many of those who have a chronic illness would agree one of the worst aspects is that it is invisible. I think this is one of our worst enemies because it means that people do not 'see' that we are actually chronically ill so they have trouble understanding or believing it.
I personally have not had many people not believe me and even if they did not, they have not expressed it to me thank god- because I would not know what I would say. I have had people say, for someone so sick, you look really good. Well thank-you! that does lift my spirits but really on the inside I am fighting as my body is starting to flare.
Nevertheless, in saying that, people sometimes do notice when something is not right... They ask if I am okay and I lie saying I am just tired but it is more than that.. those of course who know me well get what I mean but there are some people that do not know the full extent of it or know a little but not enough and I find it really hard to share it to them because to be completely honest, sometimes I really hate this illness and what it has taken away from me (which will be talked about in another blog)
MOST of the time I can accept this illness, but it is hard to tell people that you are fighting all the time and that you do not stop fighting! I am lucky I have more good days than bad, but when the bad days hit, it usually takes a week or more to get over it. It affects me mentally and physically. But do not be fooled even when I have good days I have to make sure I am not overdoing it so I don't flare my body... but god it feels amazing when you wake up 'normal' as I have forgotten what that feels like 24/7.
But I am a fighter! I will always fight this illness and I will never give up! :D
Sending love to all
Felicity.F
I personally have not had many people not believe me and even if they did not, they have not expressed it to me thank god- because I would not know what I would say. I have had people say, for someone so sick, you look really good. Well thank-you! that does lift my spirits but really on the inside I am fighting as my body is starting to flare.
Nevertheless, in saying that, people sometimes do notice when something is not right... They ask if I am okay and I lie saying I am just tired but it is more than that.. those of course who know me well get what I mean but there are some people that do not know the full extent of it or know a little but not enough and I find it really hard to share it to them because to be completely honest, sometimes I really hate this illness and what it has taken away from me (which will be talked about in another blog)
MOST of the time I can accept this illness, but it is hard to tell people that you are fighting all the time and that you do not stop fighting! I am lucky I have more good days than bad, but when the bad days hit, it usually takes a week or more to get over it. It affects me mentally and physically. But do not be fooled even when I have good days I have to make sure I am not overdoing it so I don't flare my body... but god it feels amazing when you wake up 'normal' as I have forgotten what that feels like 24/7.
But I am a fighter! I will always fight this illness and I will never give up! :D
Sending love to all
Felicity.F