Another year in blue for ME/CFS and purple for Fibro. Here is just a recap of what has happened over the last few years since this day in 2015.
This time two years ago, all my advocating was just a goal. My idea was the start of important achievements, the start of self-discovery, the start of new beginnings and changes.
I have not been to the psychologist for a year now and I am really proud that I have not relapsed mentally. I have come a long way since my diagnosis in 2014.
After May 2016, I was in the newspaper again for invisible illness week, I was a part of two video segments for Good Morning Macarthur, talking about CFS and then invisible illnesses. I made a mini film with a good friend of mine, I was featured in an article interstate about CFS.
I also began physiotherapy for my weak muscles. This was kind of scary because I was not sure what to think and how it would help. Over the last 4-5 months i have noticed my body is handling things a little better than before. For instance, in 2014 i was barely able to dance without my legs feeling like jelly and having to sit down the rest of the night/stay in bed for hours on end. However, at my 21st a few weeks ago, I danced the night away and nothing happened. No flares. It was the best feeling ever.
I have noticed that my 'bad days' are not as often, but once they do happen, they take a long time to recover from and I am down longer. However, I am happy because it is progress.
I started 2017 with a speech and i am in the midst of thinking of ideas for invisible illness week.
Although we only get recognition one day a year, despite us fighting these illnesses 365 days every year, it is an important because we are 'seen', our illnesses are acknowledged.
Another great thing I need to mention is since last year, a lot more people are actually asking about my illness. It is a nice feeling that people want to know what I go through so they can understand. Compared to a few years ago, barely anyone understood what CFS was and that I even had it.
It has taken a long time for me to accept that this illness is permanent. There are still days where I wish that I did not have to go through it. There are days where I wish that I did not have to fight. But I am here. I am fighting and I will continue too.
Here is to all the warriors out there fighting their health every day. Be brave and keep fighting.
This time two years ago, all my advocating was just a goal. My idea was the start of important achievements, the start of self-discovery, the start of new beginnings and changes.
I have not been to the psychologist for a year now and I am really proud that I have not relapsed mentally. I have come a long way since my diagnosis in 2014.
After May 2016, I was in the newspaper again for invisible illness week, I was a part of two video segments for Good Morning Macarthur, talking about CFS and then invisible illnesses. I made a mini film with a good friend of mine, I was featured in an article interstate about CFS.
I also began physiotherapy for my weak muscles. This was kind of scary because I was not sure what to think and how it would help. Over the last 4-5 months i have noticed my body is handling things a little better than before. For instance, in 2014 i was barely able to dance without my legs feeling like jelly and having to sit down the rest of the night/stay in bed for hours on end. However, at my 21st a few weeks ago, I danced the night away and nothing happened. No flares. It was the best feeling ever.
I have noticed that my 'bad days' are not as often, but once they do happen, they take a long time to recover from and I am down longer. However, I am happy because it is progress.
I started 2017 with a speech and i am in the midst of thinking of ideas for invisible illness week.
Although we only get recognition one day a year, despite us fighting these illnesses 365 days every year, it is an important because we are 'seen', our illnesses are acknowledged.
Another great thing I need to mention is since last year, a lot more people are actually asking about my illness. It is a nice feeling that people want to know what I go through so they can understand. Compared to a few years ago, barely anyone understood what CFS was and that I even had it.
It has taken a long time for me to accept that this illness is permanent. There are still days where I wish that I did not have to go through it. There are days where I wish that I did not have to fight. But I am here. I am fighting and I will continue too.
Here is to all the warriors out there fighting their health every day. Be brave and keep fighting.